This past weekend was spent at MS Society’s MS Life. We had a stand there for work, filled with all our lovely publications and our ever popular work-out DVD with Mr Motivator. It was very very busy filled with people with MS from all over the country. Well not just people with MS but family or friends too, coming for information to help them understand the condition better. It was great to meet so many fantastic people, and I was amazed how positive the whole event felt like.
Slightly ironic I guess that my own MS symptoms started flaring up a bit towards the end of the Sunday, when my leg started feeling a bit wobbly. I guess with myself working part time these days, the travel up to Manchester and working full time for 2 days might have been a bit much for the system. But it really was worth it.
As well as manning the stand I got to go to some lectures, I attended 3 of them, one by the MS international federation about MS in the world, one called “MS is a headgame about positive thinking, and the last one about Children affected by MS. Last one is a sensitive one, as MR T clearly will grow up affected by my MS, but hopefully that doesn’t need to be a bad thing all the time. I grew up with my granddad having MS and I hope that thought be something about the condition, and the fact that life in a wheelchair (as he had) clearly wasn’t anything horrible. I shared a story about my granddad on our website.
The talk about MS in the world was very interesting, it had people telling us what it is like living with MS in Egypt (where their version of the MS Society came to life after the Arab spring), India (where they think the hidden number of people with MS might be as high as 200 000), Argentina (where all decease modifying drugs are free) US (where as we know you don’t get much help at all unless you have health insurance) and Sweden (where they have government paid rehab for 4 weeks). As I am rather fascinated by stats, I can spend ages fiddling around in google analytics, I thought it was interesting that in Argentina a country of over 41 million they only have about 7000 with MS and in Sweden with a population of 9 million there are 17500 cases.
The MS is a head game talk, sounded kinda cheesy to me at first, I guess coming with the snarky, sarky attitude I mostly view life with. But actually it was really interesting, all about how people always hone in on the negative and spend far too much time grumbling and thinking about things we can’t do anything about. Later at our stand I recommended that session to a girl who wasn’t sure about what sessions to go to, and later I ran into her at the children affected by MS session and she shared my opinion about the head game one. Will try out some of the tips and try to grumble less.
Happy I took today off, I spent half of the day sleeping. But like I said, it was worth it, and I felt very proud to be apart of what we do at work as so many people came up to us and told us how much thy loved our publications and how much we had helped them. It was also great to meet some people that I have “met” only on twitter and facebook in the past.
I would recommending going along again next year if they arrange one, it was great!