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In a twitterverse far far away

April 28, 2012 by admin

Twitter is amazing. Really I love it, I’ve met several great people through it both in person and online. Someone said that the difference between facebook and twitter is that on Twitter you follow people you want to get to know, on facebook you befriend people you already know. But in this MTV generation world, the short message style communication Twitter has just seems to fit in so brilliantly. I remember during the London riots the updates on there were more timely than on the news. Traditional media really is behind social media.

Through Twitter I decided to set up my hat shop. Through twitter I established a little local hub of mums (follow me on letchworthmums). Through twitter I got to know lovely people such as Helenfrench and Emfrid .  But through twitter I got to meet a lot of other people with MS, both through the work I do at the MS Trust, but also through my personal account when I spotted people that I started following. I read their blogs and have a bit of a chat, and I admire how involved in the twittervese some of themt are. And how close many of them are, even without meeting each other in person. When I went to MS Life I had the pleasure of meeting some of them and it was lovely.

This evening something really caught my eye, it was some people tweeting about this page  Pay-It-Forward Spoonie Style. Ok before I continue, maybe and explanation of the word Spoonie? It comes from Christine Miserandino’s Spoon Theory.

“Spoonies are people that live with chronic illness; theoretically measuring personal daily abilities much as one would measure the proper amount of spoons needed for an event or occasion… sometimes having an abundance, other times coming up short.”

Anyway…back to my story. I  ame across the page Pay-It-Forward Spoonie Style. A girl called Vanessa  is pledging to get money for a new second hand wheelchair for fellow spoonie Margo, as her wheelchair has broken and would cost lots to repair  I have followed Margo on twitter for a good while now, and I read her blog, she even guest blogged for us at the MS Trust blog. And in the same way as I would sponsor a friend running a race for chairty I felt like I wanted to contribute also.  She has raised over £500 so far. So twitter really does create a twitterverse a little universe of likeminded people who find each other whatever locations they may live at. I love it, but then again I would. I met my husband on an IRC channel when I was living in Sweden and him in the UK back in the 90’s…but that is a different story!

My Twitter necklace from twitter entrepreneur @AlyssaJewellery

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